Familial cancer registry data management and support
In some families, there is an inherited tendency to develop cancer, increasing the threat of cancer for relatives. This is a tremendous opportunity for effective interventions. First we must identify families that are at risk. In order to use life-saving interventions wisely, it is necessary to capture information about the experience of cancer in the family and to provide this to future generations who seek advice. The Familial Cancer Registry provides this resource for the doctors and counsellors of the SA Clinical Genetics Service.
What we aim to achieve
Knowing you are at risk of familial cancer presents an opportunity to manage that risk, and beat cancer. There is good evidence locally and overseas that familial cancer registries save lives. Accurate identification provides an opportunity for targeting effective cancer prevention and surveillance strategies to relatives at risk. These funds are used to employ a Data officer who is responsible for efficiently and accurately obtaining, entering, retrieving and managing family cancer history information on a database used for clinical and research purposes.
My message to supporters
A Familial Cancer Registry could hold the key to helping you, your parent, your sibling, your child, and even your grandchild beating cancer. Knowledge becomes power.
Our next steps and milestones
Continuing funding of the Familial Cancer Registry is essential for the continuing operation and effectiveness of the State's Familial Cancer program.
What motivates me
I am motivated by providing care that is effective and efficient. Good care and good value.