Ocular (Uveal) Melanoma
Life after treatment
Once your treatment has finished, you will have regular check-ups to confirm that the cancer hasn’t come back. Ongoing surveillance for ocular melanoma involves a schedule of tests and scans, eye tests and physical examinations. Let your doctor know of any health problems between visits.
Some cancer centres work with patients to develop a “survivorship care plan” which includes a summary of your treatment, sets out a schedule for follow-up care, lists any symptoms and long-term side effects to watch out for, identifies any medical or emotional problems that may develop and suggests ways to adopt a healthy lifestyle. Maintaining a healthy body weight, eating well and being active are all important. If you don’t have a care plan, ask your specialist for one and make sure a copy is given to your GP and other health care providers.
For some people ocular melanoma does come back after treatment, which is known as a recurrence. If the cancer does come back, treatment will depend on where the cancer has returned in your body and may include a mix of surgery, radiation therapy, laser and immunotherapy. Enrolling in a clinical trial may also be recommended for you. In some cases of advanced cancer, treatment will focus on managing any symptoms, such as pain, and improving your quality of life without trying to cure the disease. This is called palliative treatment. Palliative care can be provided in the home, in a hospital, in a palliative care unit or hospice, or in a residential aged care facility.
When cancer is no longer responding to active treatment, it can be difficult to think about how and where you want to be cared for towards the end of life. But it’s essential to talk about what you want with your family and health professionals, so they know what is important to you. Your palliative care team can support you in having these conversations.
If you have continued feelings of sadness, have trouble getting up in the morning or have lost motivation to do things that previously gave you pleasure, you may be experiencing depression. This is quite common among people who have had cancer.
Talk to your GP, as counselling or medication—even for a short time—may help. Some people are able to get a Medicare rebate for sessions with a psychologist. Ask your doctor if you are eligible. Cancer Council SA operates a free cancer counselling program. Call Cancer Council 13 11 20 for more information.
This information is reviewed by
This information was last reviewed February 2021 by the following expert content reviewers: A/Prof William Glasson, Ophthalmologist, Queensland Ocular Oncology Service, Queensland; Dr Lindsay McGrath, Ophthalmic Surgeon, Queensland Ocular Oncology Service, Queensland; Caitriona Nienaber, 13 11 20 Consultant, Cancer Council WA; Jane Palmer, Senior Oncology Nurse and Researcher, Oncogenomics Laboratory, QIMR Berghofer Medical Research Institute, Queensland Ocular Oncology Service, Queensland; Katrina Potter, Consumer; Susan Vine, OcuMel Australia; Ann Marie Weber, Consumer; Dr Wenchang Wong, Senior Radiation Oncologist, Prince of Wales Hospital, Sydney, Conjoint Senior Lecturer, University of NSW.